Salary: €35,000 for 3 day week

Position: Permanent, Part Time

Location: RCSI Building, Beaumont Hospital, Dublin 9, Ireland

About Client

Alpha One Foundation Ireland is a charity founded in Ireland in 2001 to raise awareness, increase diagnosis, promote research, and improve the treatment of Alpha-1 Antitrypsin Deficiency (Alpha-1). Alpha-1 is one of the most common inherited conditions in Ireland. 

It is a genetic condition that can cause severe lung and liver problems and in some rare cases a skin condition called panniculitis. 

“Their vision is that every Alpha-1 individual in Ireland is diagnosed and receives specialist care and treatment in a timely fashion.”

About the Role

The Alpha-1 Foundation for Ireland are seeking a Programme Coordinator to co-ordinate operations and administration functions for the foundation. This will include the implementation of policies, promotion of fundraising events and management of the Foundation’s budget.

A key part of this role will be to engage with and support of Alpha-1 individuals and their families. This will be done both in person at events and clinics as well as over the phone and via email to the Foundation. The Programme Coordinator will help to deliver a range of public engagement and patient advocacy responsibilities when required. 

The successful candidate will develop the Alpha One Foundation Ireland and continue to improve the quality of life of Alpha-1 individuals in Ireland. Working closely with the Board, the Programme Coordinator will develop and review the strategy for the Foundation and will have responsibility for its implementation while leading the delivery of services in full compliance with all legal and statutory frameworks.  

This is an exciting opportunity for an accomplished Programme Manager or Project Leader to lead a Foundation doing important work in the field or health and research. If you have strong interpersonal and communication skills and the ability to organise and prioritise work with strong attention to detail, this could be the role for you!